Services Supp. Self-Direction
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Services Supp. Self-Direction
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Outcome type: Favorable
Digital health literacy was directly associated with self-efficacy (β = 0.21, p < .05) and indirectly associated through social support (β = 0.10, 95% CI 0.06–0.14) and life satisfaction (β = 0.17, 95% CI 0.12–0.22) among 1,016 community-dwelling older adults across six Chinese provinces. A sequential mediation pathway ran from digital health literacy to social support to life satisfaction to self-efficacy (β = 0.05, 95% CI 0.01–0.09). Health consciousness significantly moderated these relationships, with stronger associations among participants high in health consciousness (direct path β = 0.32 vs 0.09; sequential indirect path β = 0.06 vs 0.01). Qualitative analysis of 30 interviews identified information-processing strategies, social validation processes and goal-directed feedback loops that translated digital competencies into psychological resources.
Other
Peer Reviewed
Age > 65
Linking Gap and Impact
Nkouaga, F
2025| Dialogues in Health| Google Scholar| 10.1016/j.dialog.2025.100243
Outcome type: Favorable
Individuals reporting higher satisfaction with insurance coverage, ongoing relationships with primary care providers, and greater financial literacy were more likely to engage in preventive health behaviors. Cost-related barriers were initially associated with increased utilization but their direct influence diminished once financial knowledge was accounted for. Once structural and informational dimensions were considered, traditional demographic variables such as race and gender lost statistical significance, underscoring the greater impact of systemic and educational factors.
Other
Peer Reviewed
Age ≤ 65
Linking Gap and Impact
Wang, Z; Niu, B; Fukayama, K
2026| Geriatric Nursing| Google Scholar| 10.1016/j.gerinurse.2025.103775
Outcome type: Favorable
Adequate care literacy was associated with preference for mixed or formal care services. Economic status, subjective health and community involvement also affected care preferences. The authors concluded that it is important to improve care literacy and support informed care choices among older adults.
Other
Peer Reviewed
Age > 65
Linking Intervention and Impact
Schmidt, A; Weckbecker, K; In Der Schmitten, J; Götze, K; Mortsiefer, A
2025| Health Expectations| Google Scholar| 10.1111/hex.70392
Ambulatory patients in German general practices received facilitated advance care planning provided by trained professionals.
Outcome type: Favorable
Participants valued comprehensive advance directives and structured ACP conversations in general practice. Key motivators for seeking facilitation were maintaining autonomy and reducing family burden. Trustworthy discussions with professional facilitators, structured guidance and clear communication — particularly involving healthcare proxies — were essential to a satisfying ACP process. Despite prior interest in discussing care preferences, some participants had still not initiated those conversations. Based on interviews with eight German ambulatory patients (six female, two male; mean age 63.6) across two general practices, conducted before, immediately after and 12 months after facilitation.
Other
Peer Reviewed
Linking Intervention and Impact
Zhang, S; Li, J; Zhang, Y; Hu, X
2025| International Journal of Nursing Studies| Google Scholar| 40378812| 10.1016/j.ijnurstu.2025.105096
Included randomized controlled studies delivered advance care planning — discussing, documenting and deciding on end-of-life preferences — to patients with advanced cancer.
Outcome type: Neutral
Advance care planning significantly improved completion of advance directives (OR 7.93, 95% CI 2.76–22.77, p = 0.0001) and palliative care utilization (OR 1.39, 95% CI 1.08–1.78), but was not effective in improving anxiety, depression or decisional conflict. The authors concluded that ACP may have desirable impacts on advance directive completion and palliative care utilization for patients with advanced cancer.
Meta Analysis
Peer Reviewed
Cancer
Linking Intervention and Impact
Contreras, AR; Miner, SA; Harris-Gersten, ML; Siconolfi, D; Eberhart, NK
2025| Rand Health Quarterly| Google Scholar| 41031387| N/A
Individuals with psychiatric conditions completed psychiatric advance directives — documents recording preferences for treatment, setting of care, points of contact and a decision-making surrogate before a mental health crisis — across community, inpatient and outpatient contexts.
Outcome type: Favorable
Psychiatric advance directives were found to improve autonomy in decision-making, reduce coercion in crisis interventions, and lower involuntary hospitalization rates, and were legally recognized in many U.S. states and other countries. Barriers included inconsistent legal recognition across jurisdictions, lack of provider understanding and training, and low awareness among persons with psychiatric conditions. Promising practices included clinician training and awareness programs, facilitation with peer worker or clinician support, and clear legal mandates. The authors concluded that PADs are a promising tool for people with serious mental illness, but implementation requires clear legal guidance and clinician buy-in.
Other
Peer Reviewed
Mental Health
Linking Intervention and Impact
Dharmagunawardene, D; Kularatna, S; Halahakone, U; Purtell, L; Bonner, A; Healy, HG; Senanayake, S
2025| Journal of Renal Care| PubMed| 39639604| 10.1111/jorc.12517
Included studies evaluated health system kidney supportive care interventions for adults with chronic kidney failure.
Outcome type: Favorable
Kidney supportive care interventions were found effective in improving patient outcomes, especially end-of-life care and symptom management, though significant gaps remained, across 60 included studies of which one-third were randomised controlled trials. The most common Effective Practice and Organisation of Care domain was care delivery (58/60); end-of-life care (33/60) and physical aspects of care (19/60) were the most common quality palliative care domains; multidisciplinary shared care featured in 26 studies; cultural (0/60) and ethical aspects (3/60) were least described.
Systematic Review
Peer Reviewed
Age ≤ 65
End-Stage Renal Disease
Linking Intervention and Impact
Götze, K; Bausewein, C; Chernyak, N; Feddersen, B; Fuchs, A; Hummers, E; Icks, A; Kirchner, Ä; Klosterhalfen, S; Kranefeld, N; Laag, S; Lezius, S; Meyer, G; Montalbo, J; Nauck, F; Pepić, A; Przybylla, S; Rosu, I; Schildmann, J; Schunk, M; Stanze, H; Stöhr, A; Thilo, N; Vogel, C; Zapf, A; Marckmann, G; in der Schmitten, J
2025| Deutsches Arzteblatt International| PubMed| 40554660| 10.3238/arztebl.m2025.0077
Nursing homes received BEVOR, a complex advance care planning intervention addressing individual, institutional and regional levels through facilitator training, reliable ACP processes, organisational development and education of health professionals; control homes received no intervention.
Outcome type: Neutral
Hospitalization rate did not differ between groups (IRR 1.0, 95% CI 0.97–1.1) and declined similarly in both during COVID-19, across 44 nursing homes of which 23 received the intervention. Care consistency with preferences was similar (OR 0.9, 0.4–1.9), though exploratory analysis suggested greater consistency in the 6 of 23 homes meeting adherence criteria (OR 1.9, 0.7–5.3). Written emergency plans were significantly more common in the intervention group (IRR 11.6, 8.2–16.4) and in adherent homes (IRR 30.1, 15.7–57.6). The authors noted the intervention did not permeate sufficiently, largely due to the pandemic, so the trial was not conclusive.
Peer Reviewed
Age > 65
Linking Intervention and Impact
Murray, J; Grami, Z; Benson, K; Hritz, C; Lawson, S; Grudzen, CR; Cuthel, A; Southerland, LTF
2025| Internal and Emergency Medicine| PubMed| 40699283| 10.1007/s11739-025-04048-5
Emergency department clinicians received PRIM-ER, a multi-component primary palliative care intervention comprising evidence-based multidisciplinary education, simulation-based workshops on serious illness communication, clinical decision support, and audit and feedback.
Outcome type: Neutral
The intervention did not change the proportion receiving a goals-of-care conversation in the ED (38.2% vs 40.3%, p = 0.79) across 153 included cases (76 pre-intervention, 77 post-intervention), and only 6.5% had a DNR order before the ED visit. Cancer-related complaints (OR 12.9, 95% CI 4.15–39.92) and respiratory emergencies (OR 3.02) were associated with increased odds of a GOC conversation. Of the 60 GOC conversations that occurred, 76.7% resulted in a change in code status, care plans, hospice, or updated ACP documents.
Other
Peer Reviewed
Age ≤ 65
Linking Intervention and Impact
Trakoolngamden, B; Monkong, S; Chaiviboontham, S; Satitvipawee, P; Runglodvatana, Y
2025| Journal of Hospice & Palliative Nursing| PubMed| 39804048| 10.1097/NJH.0000000000001100
Patients and family caregivers received the Peaceful End-of-Life Care Program: a 4-week program of health education, self-care for symptom management, advance care planning, psychosocial support and family involvement, plus standard care; the control group received standard care alone.
Outcome type: Favorable
The experimental group showed significant improvement in perceived good death (Good Death Inventory), quality of relationships, and end-of-life care knowledge, with no such improvements in the control group, across 122 enrolled participants. The authors recommended early initiation of the program to optimize benefits.
Other
Peer Reviewed
Age ≤ 65
Cancer
Linking Intervention and Impact
Reed, PS; Kim, Y; Shen, JJ; Kosaraju, S; Kang, M; Carson, J; Ioanitoaia Chaudhry, I; Kim, S; Jeong, C; Hwang, Y; Yoo, JW
2025| International Journal of Environmental Research and Public Health| PubMed| 10.3390/ijerph22091399
Primary care providers trained through two Geriatrics Workforce Enhancement Programs delivered advance care planning via telehealth to dual-eligible Medicare/Medicaid patients in an urban safety net system.
Outcome type: Favorable
Receiving ACP was associated with lower hospitalization costs of USD 23,928.84 overall. Compared with non-Hispanic Whites, hospitalization costs among Hispanic elders were higher by USD 14,232.40, while costs for non-English speakers and those with increased comorbidities were higher by USD 27,346.60 and USD 26,072.70 respectively. Dementia patients seen by providers trained to offer telehealth ACP realized significant cost savings, with marked differences among those of non-White racial backgrounds.
Other
Peer Reviewed
Age > 65
Dementia
Linking Intervention and Impact
Lin, H; Ko, E; Wu, B; Pei, Y; Ni, P; Zhang, T
2026| Geriatrics & Gerontology International| PubMed| 10.1111/ggi.70306
Included studies evaluated advance care planning interventions in older populations across Asian and Western cultural contexts.
Outcome type: Favorable
ACP interventions significantly increased completion of ACP documents, occurrence of ACP and end-of-life care discussions, consistency between preferred and actual end-of-life care, and ACP engagement among older populations, across 32 included studies.
Meta Analysis
Peer Reviewed
Age > 65
Linking Intervention and Impact
Zhang, P; Erbelding, TC; Schneider, GE; Vernick, NH; Cagle, JG
2025| Palliative Medicine Reports| PubMed| 10.1177/10966218251362129
Adult residents of Howard County, Maryland received a community-based advance care planning campaign running from 2017 to 2021, aimed at increasing living will and health care agent documentation in the general adult population.
Outcome type: Favorable
ACP adoption increased overall by more than 10% since 2016 (p < 0.001) across 6,037 respondents surveyed over three years. Upward trends appeared across all racial groups, but statistically significant increases were found only among White and Hispanic residents (p < 0.001). Increased odds of ACP adoption associated with the campaign were found for residents aged 65 and under, White residents, married individuals, and those with a regular health care provider (e.g. OR 1.35, p < 0.001). The authors concluded that community-based campaigns can increase ACP awareness and adoption, though more work is needed in diverse communities.
Other
Peer Reviewed
Age > 65
Age ≤ 65
Linking Gap and Impact
Pahn, J; Yang, Y; Kim, SH
2025| International Journal of Nursing Studies Advances| Google Scholar| 40491900| https://doi.org/10.1016/j.ijnsa.2025.100349
Outcome type: Favorable
Self-efficacy and self-management had significant direct effects on health-related quality of life; diabetes knowledge influenced HRQoL indirectly through self-efficacy. No variables showed a significant effect on HbA1c.
Other
Peer Reviewed
Diabetes
Linking Intervention and Impact
Ouchi, K; Block, SD; Rentz, DM; Berry, DL; Oelschlager, H; Shiozawa, Y; Rossmassler, S; Berger, AL; Hasdianda, MA; Wang, W; Boyer, E; Sudore, RL; Tulsky, JA; Schonberg, MA
2025| JAMA Network Open| PubMed| 10.1001/jamanetworkopen.2025.16582
Patients received ED GOAL: SIC-trained research nurses delivered a motivational interview about serious illness conversations, a structured serious illness conversation, and communication priming for patients and their primary clinicians on a tablet computer in the emergency department or within one week of leaving; the control group received usual care.
Outcome type: Neutral
Medical record documentation of end-of-life values and goals was significantly higher in the intervention group at 3 months (24.3% vs 9.9%, p = .03) and 6 months (31.4% vs 12.7%, p = .008) among 141 randomized patients (mean age 66.7, 51.8% female, 60.3% metastatic cancer). At 1 month there was no difference in patient-reported ACP engagement (3.32 control vs 3.37 intervention, p = .58), though 17.1% of intervention patients versus 7.0% of controls had discussed care preferences with physicians (p = .07).
Peer Reviewed
Age > 65
Age ≤ 65
Cancer
Dementia
Linking Intervention and Impact
Hsu, YH; Wang, MH; Hu, WY; Ke, LS
2025| Supportive Care in Cancer| PubMed| 10.1007/s00520-025-09866-z
Cancer patients aged over 65 received advance care planning conversations led by a trained nurse using a cartoon-based decision aid; the control group received standard care.
Outcome type: Neutral
Herth Hope Index and ACP Attitude Scale scores did not differ significantly by group, time, or group × time among 72 older adults. STAI-S anxiety scores did not differ between groups, though both groups decreased significantly over time. The experimental group showed higher ACP behavioral intention scores over time than the control group. The authors concluded that fear of patient hopelessness should not be used to postpone ACP conversations.
Peer Reviewed
Age > 65
Cancer
Linking Intervention and Impact
Pask, S; Okwuosa, C; Mohamed, A; Price, R; Young, J; Curtis, T; Henderson, S; Winter-Luke, I; Sunny, A; Chambers, RL; Greenley, S; Johansson, T; Bone, AE; Barclay, S; Higginson, IJ; Sleeman, KE; Murtagh, FE
2025| Palliative Medicine| PubMed| 40908745| 10.1177/02692163251362567
Included reviews evaluated seven models of palliative and end-of-life care for adults living at home, grouped by setting (in-home, outpatient), professional type (specialist, integrated, non-specialist) or mode (telehealth, education and training). Components included holistic person-centred assessment, skilled professionals, access to medicines, care and equipment, patient and family support, advance care planning, service integration, virtual and remote technology, and education.
Outcome type: Favorable
The 'in-home palliative care' model was the most researched, with good evidence of positive benefit, across 66 reviews screened from 6,683 papers. Specialist and integrated models showed evidence of improved patient and service-utilisation outcomes, while cost-effectiveness evidence was lacking. Meta-level evidence supported provision of in-home palliative care, with most review-level evidence showing a positive effect on patient outcomes.
Systematic Review
Peer Reviewed
Linking Intervention and Impact
Sachs, GA; Johnson, NM; Gao, S; Torke, AM; Hickman, SE; Pemberton, A; Vrobel, A; Pan, M; West, J; Kroenke, K
2025| JAMA| PubMed| 39878993| 10.1001/jama.2024.25845
Caregivers received monthly calls from a trained nurse or social worker plus evidence-based protocols to manage neuropsychiatric symptoms, caregiver distress and palliative care issues including advance care planning, symptoms and hospice (n = 99); the control group received usual care with written dementia resource information (n = 102).
Outcome type: Neutral
Dementia palliative care did not significantly improve neuropsychiatric symptoms through 24 months: NPI-Q severity was 9.15 versus 9.39 (between-group difference −0.24, 95% CI −2.33 to 1.84), with no significant difference in rate of change, among 201 enrolled dyads (patients 67.7% female, 43.3% African American, mean age 83.6). No significant differences were found in secondary outcomes except fewer combined ED and hospitalization events with palliative care (1.06 vs 2.37 events per patient; difference −1.31; RR 0.45).
Peer Reviewed
Age > 65
Dementia
Linking Intervention and Impact
Volandes, AE; Chang, Y; Lakin, JR; Paasche-Orlow, MK; Lindvall, C; Zupanc, SN; Martins-Welch, D; Carney, MT; Burns, EA; Itty, J; Emmert-Tangredi, K; Martin, NJ; Sanghani, S; Tilburt, J; Pollak, KI; Davis, AD; Garde, C; Barry, MJ; El-Jawahri, A; Quintiliani, L; Sciacca, K; Goldman, J; Tulsky, JA
2025| JAMA Network Open| PubMed| 40343696| 10.1001/jamanetworkopen.2025.9150
Patients received evidence-based video decision aids on advance care planning and their clinicians received communication skills training, delivered in ambulatory oncology clinics; control clinics received usual care.
Outcome type: Favorable
Patients at clinics receiving the bundled intervention had significantly more ACP documentation than those at usual-care clinics (25.3% vs 20.8%) across 13,800 unique patients at 29 clinics in three health care systems, suggesting that video decision aids plus clinician communication training improve ACP documentation for older adults with advanced cancer.
Peer Reviewed
Age > 65
Cancer
Linking Intervention and Impact
Wolff, JL; Scerpella, D; Giovannetti, ER; Roth, DL; Hanna, V; Hussain, N; Colburn, JL; Abshire Saylor, M; Boyd, CM; Cotter, V; McGuire, M; Rawlinson, C; Sloan, DH; Richards, TM; Walker, K; Smith, KM; Dy, SM
2025| JAMA Internal Medicine| PubMed| 39621341| 10.1001/jamainternmed.2024.6215
Trained facilitators engaged patients and families in a multicomponent primary care-based advance care planning initiative, supported by EHR tools and documentation aids, across 51 primary care practices in two health systems; control practices received usual care.
Outcome type: Neutral
The initiative increased new EHR-documented end-of-life preferences but also increased potentially burdensome care at end of life among a subgroup of decedents with serious illness. Among 64,915 older patients at 51 primary care practices, 4.6% of those in intervention practices engaged in facilitator-led ACP.
Peer Reviewed
Age > 65
Linking Gap and Impact
Boz, MK; Çimen, M
2025| Healthcare (Basel)| Google Scholar| 10.3390/healthcare13060632
Outcome type: Favorable
E-health literacy affected the patient-physician relationship, the patient-physician relationship affected treatment adherence, and e-health literacy affected treatment adherence, among 425 adults surveyed in Istanbul. The patient-physician relationship played a mediating role between e-health literacy and treatment adherence.
Other
Peer Reviewed
Age ≤ 65
Outcome type: Favorable
E-health literacy correlated with all self-care components (r = .46–.59, p < .001) among 110 Korean COPD patients, as did attitudes toward internet health information (r = .45–.66, p < .001). E-health literacy was the strongest predictor of maintenance (B = 0.44) and monitoring (B = 0.45), while attitudes toward internet health information most strongly predicted management (B = 0.63). Models explained 27.4%–48.9% of variance.
Other
Peer Reviewed
Chronic Lung Disorders
Linking Intervention and Impact
Garcia-Dia, MJ
2026| The Informatics Guide to Healthcare (Book)| PubMed|
Outcome type: Favorable
Digital tools were found to offer unprecedented opportunities to disseminate health information and facilitate care, but their effectiveness was contingent on addressing underlying issues of digital access, ensuring cultural relevance, and empowering individuals to critically appraise information.
Other
Linking Intervention and Impact
Niazy, SM; Abadi, NN; Radhi, MM; Al-Eqabi, QAK; AL-Thabhawee, GDM
2025| Iranian Journal of War and Public Health| PubMed| 10.58209/ijwph.17.2.197
Outcome type: Favorable
Digital health literacy technology was significantly associated with both the use of e-health services (r=0.56) and quality of life (r=0.42). Regression analysis indicated that both DHL technology (β=0.28, p=0.003) and e-health use (β=0.39, p<0.001) significantly predicted quality of life. Mediation analysis revealed a statistically significant indirect effect (B=0.20) of digital health literacy technology on quality of life through the use of e-health services.
Other
Peer Reviewed
Linking Gap and Impact
Keles, A; Somun, UF; Kose, M; Arikan, O; Culpan, M; Yildirim, A
2025| World Journal of Urology| PubMed| 39883268| 10.1007/s00345-025-05463-1
Outcome type: Favorable
Poorer digital health literacy and health literacy were significantly associated with older age, lower educational attainment and lack of internet access. The findings suggested a link between DHL/HL levels and treatment adherence and quality of life in NMIBC patients.
Peer Reviewed
Cancer
Linking Intervention and Impact
Ji, H; Pan, W; Xin, J
2025| Archives of Gerontology and Geriatrics| PubMed| 10.1016/j.archger.2025.106124
Outcome type: Favorable
Self-rated digital skills robustly predicted improvements in physical, mental and social health among older adults; benefits operated via social participation, health behaviors and digital health engagement, with larger returns for vulnerable groups.
Peer Reviewed
Age > 65